Aoife O'Sullivan of Leigh died at the age of four while waiting for a heart transplant.
He said: 'There is not enough awareness of kidney disease and how life-changing a transplant can be, and I want to help change that.
The transplant campaign believes a reluctance to talk about the issue is contributing to a deadly shortage of organs transplant campaigners have said.
'You are far more likely to need a transplant than you are to need to donate your organs so please, if you haven't signed the organ donor register yet, do it today. Would you accept a lifesaving organ?
An NHS study shows three families a week are saying no to organ donation.
It found when families are left to make such a decision on their loved one's behalf, some decide it is safer to say no.
To mark Organ Donation Week, which ran from September 4 to 10, the Southern Health and Social Care Trust is proudly supporting Organ Donation Week and an appeal for the public to talk about organ donation. Many will have died shortly after being removed from that list.
Anthony Clarkson, assistant director of organ donation and transplantation for NHS Blood and Transplant, said: "It's a tragedy that people are dying unnecessarily every year in Hertfordshire waiting for transplants".
There are 873 people from these communities in London awaiting a transplant and, nationally, they make up 29 per cent of the list.
"We know that if everyone who supported donation talked about it and agreed to donate, most of those lives would be saved". However if you want to be a donor, your family's support is still needed for donation to go ahead. A few words now can make an extraordinary difference.